FORT ST. JOHN, B.C. – A national ePetition has been launched, raising awareness for Diffuse Intrinsic Pontine Glioma (DIPG), a terminal and malignant brain tumour found in children. It’s incurable and inoperable, with a zero percent survival rate. Centennial Park stage will be lit up in gold tonight in support, while residents can wear grey and gold to show solidarity.
Locally, one family is sharing their story, making the most of a tragic situation – Nine-year-old Adaura Cayford passed away last summer on July 1, 2020, after her battle with DIPG.
“It’s really between them passing in your arms or passing in the hospital,” said Isabelle Cayford, Adaura’s mother, noting DIPG is difficult to study because parents are faced with making the most of the time left.
The petition declares May 17 as National DIPG Awareness Day, created by Jacqueline and Michal Borkowski, parents of four-year-old Isabelle Borkowski who also passed away from DIPG on December 16, 2020.
Isabelle says the timing was right to get involved and spread awareness of the disease.
She added that tissue samples were given by Adaura to help with research efforts.
Fort St John Mayor Lori Ackerman says more awareness is needed for serious childhood illnesses.
Prince George – Peace River – Northern Rockies MP Bob Zimmer was approached by the Cayford family and says he’s keen to bring attention to the cause.
“I was at the memorial service for their daughter, way too young of an age. Anything we can do for the cause and get support in the medical field for this, I’m happy to do,” said Zimmer.
Families across the country are working together to contact all 338 MPs and collect as many signatures as possible before the petition closes on September 10, 2021.
Campaign Page: https://www.facebook.com/DIPGAwarenessDayCanada
May 17 Event Page: https://www.facebook.com/events/1049346405592044